Authors: Aline Charabaty, MD, AGAF, FACG, Associate Professor of Medicine, Johns Hopkins School of Medicine, Medical Director of the Division of Gastroenterology and Hepatology and Clinical Director of the IBD Center, Johns Hopkins-Sibley Memorial Hospital; Brooke Abbott Abron, Founder, IBDMoms, IBD Social Circle Advocate; Tina Aswani-Omprakash, MPH, CEO, South Asian IBD Alliance, IBD Social Circle Advocate; Laurie Keefer, PhD, Clinical Health Psychologist and Professor of Medicine, Psychiatry and Biomedical Sciences, Icahn School of Medicine at Mount Sinai; Amy Stewart, FNP-C, Nurse Practitioner, Capital Digestive Care
Link: https://www.ibdsocialcircle.com/community-ibd-whitepaper/
Publication Date: October 2025
Our very own Tina Aswani-Omprakash, MPH, was a co-author on an important white paper commissioned by Johnson & Johnson, titled “The Power of Community in Inflammatory Bowel Disease.” The white paper drew on a survey of over 500 adults living with IBD in the US. It highlighted that 84% adults living with IBD experienced IBD-related stigma and carried a significant psychosocial burden that impacted their quality of life. In addition to access to treatment options, the white paper emphasized the importance of community support in navigating the invisible psychosocial challenges of living with IBD.